Reality Check

Things are never as though they seem. We purpose to speak the unseen as though seen according to His Word, & people generally prefer to hear praise reports. However, truth be told: this journey sucks. Yet, there couldn’t be a more likely candidate for a Bible-story-kind-of- supernatural-God-intervention than Josiah…after all, he’s already been delivered from biological abandonment & orphanage life in a foreign country, adopted into a Christ-centered family & into the family of the Kingdom of Heaven on Earth, along with his two biological siblings in tact. That in & of itself is a testimony. However, this present kidney failure/transplant journey kicks the reality of a few more details into a gear of another dimension.

Dialysis is a really big deal. I didn’t know that before. Today, we again continuously battle throughout dialysis, as to whether the flow in his line is clotting or being cut off by how the line runs along his clavicle. If it’s the former, it involves additional meds again, as well as longer hook-up time in the chair. If it’s the latter, he is unable to move for the entire four hours because every move cuts off the flow. His blood pressure & weight goal impacts & is impacted by all of it. I will forever respond to those who are in the midst of a doctoring journey with completely different eyes, ears, & hands. Every dialysis treatment involves huge chunks of time, risk, & detailed complications. Every day in between prepares for the next dialysis treatment. The topic of busy schedules no longer has relevance living amongst hurting families whose lives revolve around doctoring & disease.

We have nearly finished reading our Pediatric Kidney Transplant Manual. Truth be told: even though people have successful transplant stories all the time in this nation, this is no small endeavor. The surgery & recuperation time/issues/risks are really big deals, especially if one of our other kids ends up being the donor match, not to mention, that due to the life-long anti-rejection medications, all of the normal risks every individual watches their diet, exercise, & safety concerns over, multiply a gazillion times for the rest of the transplant individual’s life with regard to infections, disease, & the list goes on…mind-boggling.

For today, dialysis month 2, week 1, day 3 complete. Dad is going to give mom a break this weekend & we’re switching things up. Our family will be separated in two places – feels strange after being together as a homeschooling, family ministry oriented family for 23 years – but it’s how it needs to be…for today. Habakkuk 3:17-19 (NAS) comes to mind:

Though the fig tree should not blossom
And there be no fruit on the vines,
Though the yield of the olive should fail
And the fields produce no food,
Though the flock should be cut off from the fold
And there be no cattle in the stalls,
18 Yet I will exult in the Lord,
I will rejoice in the God of my salvation.
19 The Lord God is my strength,
And He has made my feet like hinds’ feet,
And makes me walk on my high places.