Our youngest adopted son’s kidney failure/donor/miracle needs (see below) has thrust our family into a world of families whose reality is to deal daily with physical infirmities & all that extensive medical journey encompasses. It has also led The Arts Expressed down the pathway of a sound healing therapy certification pursuit. You will be hearing much more from me on this subject in the coming months, as well as an accompanying website, music, etc. Thank you for for patience & compassion!

Taking A Deep Breath for the Next Leg of This Journey

Last week we received a call from our daughter’s transplant team with news of her not being able to be our son’s donor, due to her young age, in conjunction with the factor 11 deficiency flag they discovered in her screening process; this surgery, one she does not need to have, would involve an unnecessary risk. (Read Jocilyn’s response below.) In month five of this journey that our family is on, we take a deep breath and begin again. We did place Josiah on the deceased donor list two weeks ago, with a wait time of six months to five years. We believe the Lord revealed some necessary information that He has already turned to good.

If we remain at Amplatz Children’s Hospital Kidney Center, things are going well, as they are fully equipped to work with all of the particular/special details of pediatric dialysis, and he has an excellent staff of doctors/nurses. If we choose to move Josiah closer to home, however, he would be placed in an adult dialysis unit, which would probably require another central line surgery and other precautions to ensure the required dialysis flow for more long term care, as well as to prevent the risk of infection. There would also be transportation complications in another direction than everyone needs to be going. We, therefore, as a family, have talked with his social worker/doctors about Josiah’s best interest being to continue right where he is at Amplatz, as an additional surgery that is only required if we move him, is not our desire. There is no easy way to make this journey uncomplicated it seems. For today, this is what we do/know. We have not shared on this site continuing medical issues with Josiah’s dad & his older sister, Jessa, ongoing since January as well. Thank you all for your continued prayers.

Pray for the social workers, doctors, and for our family as to how to continue in the midst of these difficulties we find ourselves. We know Father God is good…always, and that He will turn all things to good some how, some way…it is His nature and will to grow Josiah’s kidney – suddenly – problem solved. In the meantime, our social worker and doctors continue to suggest approaching the Church for possible donors? Any compassionate individuals out there feeling the Lord’s prompting to give generously to a sixteen year boy in need of a kidney? Since he has not transplanted before, the donor match is generally more flexible, due to his current number of antibodies being less complicated.

We are greatly in need of healthy individuals between the ages of 18-55 with blood type O who would be willing to be tested as possible donors. Please call the transplant center at 612-625-5115, Ext. 1, and request to be put on Josiah Sorenson’s possible donor list ASAP. The screening process is very thorough (i.e., even the slightest unnecessary risk to the donor, i.e. Joci, they will not do the surgery).

The transplant center will further instruct any willing donors at the onset of an initiated phone call. Until we receive supernatural intervention, we walk out this journey in the natural as directed, and anything living donor related is now in ASAP mode, as we have entered month five of Josiah’s journey.

Jocilyn’s Perspective

Dear family and friends,

So, after all the fun doctor appointments and needle pokes these last couple of months, my transplant team has determined that I cannot be my brother’s kidney donor. (I was definitely disappointed . ) I am a match and met all the requirements, but some of my labs revealed that I have a mild case of factor 11 deficiency. Not to worry, it is not life threatening! It just means that I would be at a higher risk of bleeding during an operation, such as a kidney transplant, or if I was severely wounded. The surgeons do not know exactly how factor 11 affects me, considering I have never undergone surgery, so they have chosen to not risk my health and safety. Even though I was thoroughly disappointed, I still believe that my brother can be healed, whether it be through the maturation of his kidneys or through a transplant. All that said, I want to thank every person that has placed me in their prayers and thoughts while my family and I waited for the outcome. I APPRECIATE YOU SO MUCH!

Love, Joci

P.S. If you or someone you know is interested in being a potential donor for my brother, Josiah Sorenson, you can contact the kidney transplant center at 612-672-7270. To anyone that feels led to pursue this, whether it be for my brother or for someone else, THANK YOU SO MUCH!